Early in 2014, Staci Rutherford, the
daughter of a TTP patient, reached out the Answering TTP Foundation to share
her mother’s story of TTP and her idea of how she could make a difference in
the TTP community moving forward.
Below is Staci’s story of how and why
she has decided to get involved!
Joanie Totes: Raising TTP
Awareness…one bag at a time™
Last spring, almost a week after
Mother’s Day, my mother, who I affectionately called “Joanie”, was diagnosed
with a rare, life-threatening autoimmune blood disorder, ThromboticThrombocytopenic Purpura (TTP). She spent the entire summer in the
hospital, undergoing treatment but, unfortunately, things took a turn for the
worse.
The service we had
for Joanie was a joyous celebration of her life. Family and friends shared
stories of how "fancy and fabulous" Joanie was. She always had
extraordinary taste. Everyone laughed while quietly reminiscing on their own
memories of Joanie. Joanie traveled and shopped around the world, and made
friends everywhere she went. Her beautiful smile and spirit could light
up a room. I knew from the moment I was
introduced to the Answering TTP Foundation that I wanted get involved to help
raise awareness. While grieving the devastating, unexpected loss of my mother,
I began brainstorming on what I could do to honor her. It had to be something that truly represented
Joanie.
Joanie and I both loved accessories,
specifically, statement jewelry, scarves, and handbags. I grew up shopping
in her closet, so naturally I had began my own collection of handbags and
accessories, which eventually turned into a business. With a modest
investment from Joanie, I started HandbagReport.com,
an online store, and later, added a blog to report handbag trends and
designers. Joanie was always my #1 supporter - we threw purse parties,
traveled to trade shows and picked our favorite bags each month from the latest
fashion magazines.
One day, I had an “a-ha moment” and
decided to create a line of handbags, Joanie Totes, in memory of Joanie, that
would also raise awareness about TTP. As my concept for Joanie Totes took
shape, I came across the work of an incredibly talented fashion illustrator,
Jennifer Lilya. When I discovered her client list included
Bloomingdale’s, Saks Fifth Avenue, Neiman Marcus, T.J. Maxx, Marshalls, and
Sephora, I felt an instant connection because those were Joanie’s favorite
stores. I knew she would be the perfect person to bring my vision for
Joanie Totes to life. Once Jennifer and I designed the first Joanie Tote,
it was manufactured in Los Angeles’ fashion district.
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The ‘Be Fancy & Fabulous’ Joanie Tote is available
at www.shop.handbagreport.com
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