Tuesday 29 October 2013

The 2013 Walk to Answer TTP Together Spirit Award goes to....

It was a very difficult decision to make, as so many participants in the Walk to Answer TTP Together showed amazing TTP spirit! But the winner of the first ever Walk to Answer TTP Together Spirit Award is….

Island Walkers
Pam and her team did an amazing job of showing their TTP spirit, while also raising life-saving awareness for TTP during their Walk to Answer TTP Together! Not only did they have 20+ people walk for 2 hours in educational walk day t-shirts, they also decorated a small booth with balloons and signage!

For their walk they made unique hand signs that could easily be carried, as well as decorating canisters with the walk logo for small change donations to go towards the team's ultimate fundraising goal!

Island Walkers on CBC

The icing on the TTP Spirit cake was their efforts to also garner attention from a local media station, where they were interviewed for TV, while also attracting the attention of the Canadian Blood Services PEI Facebook Page to get their efforts recognized by posting a picture of their team!

Great job Island Walkers and thank you for your participation in the 2013 Walk to Answer TTP Together!

This year's unique prize that will be sent to Pam Smith (captain of the Island Walkers)!

As we mentioned above, this was not an easy decision for us as so many of you really went for it and showed your TTP awareness spirit across the globe! Check out the remarkable spirit other participants showed during the 2013 Walk to Answer TTP Together!

The Toronto Walkers dressed up with red hats, wigs, necklaces and balloons to show their TTP awareness spirit!
Team Cindy Moes used balloons and bristol board signage to show their TTP awareness spirit!
Audrina's Army had personalized T-shirts made for all team members to show their support for Audrina!

Thank you again to everyone who participated and donated. The 2013 Walk to Answer TTP Together could not have been as successful without you!

The 2013 Walk to Answer TTP Together Top Fundraising Team Award goes to...

Team – Walking for Trevor (Captain: Kathy Downs)

This year the Walk to Answer TTP Together raised over $30,000!!!

Team Walking for Trevor helped to raise just over one third of that final total, raising an astounding $11,340.03! An anonymous donor has added $350 to the team's overall fundraising, bringing the final total to $11,690.03! Amazing! These funds will help to go towards life-saving education, patient support and research for TTP.

This is the teams second year participating in the Walk to Answer TTP Together. Two years ago, on September 24, 2011, Kathy Downs lost her son Trevor to TTP. Last year the team formed and walked together as a way to mark the first anniversary of Trevor’s passing and now it has become something they look forward to doing to honor Trevor each year.

This year's unique prize that will be sent to Kathy Downs (captain of the team Walking for Trevor)!

Congratulations to team Walking for Trevor! Thank you so much for your determination to help raise awareness for TTP and funds for TTP education, support and research.  

Thank you to all those who have donated to and participated in the Walk to Answer TTP Together

The 2013 Walk to Answer TTP Together Top Fundraising Individual Award goes to....

This year the Walk to Answer TTP Together raised over $30,000!!!

Congratulations to Mina who raised $4,545 for TTP education, support and research during her 2013 Walk to Answer TTP Together fundraising campaign! As part of the reward for this amazing accomplishment, an additional $350.00 has been donated by an anonymous donor to Mina’s fundraising bringing her final total to $4895. Wow!

Not only is Mina a fundraising machine, she is also one of the Foundation’s most involved virtual volunteers. Mina is an active member of our Patient Advisory Board, participant in some of the Foundation's support programs and is often a presence during our support groups in person or via teleconference. Mina has taken it upon herself to become as active as possible with the Foundation - as a patient who battled TTP she is all too aware of the importance of raising awareness and funds for TTP to ensure that one day we find an answer for TTP. 

This year's unique prize that will be sent to Mina!

Thank you again to Mina for all your hard work during the Walk to Answer TTP Together and as an active volunteer with the Foundation. To find out more about how you can get involved please visit us HERE.

Thank you to all those who have donated to and participated in the Walk to Answer TTP Together

Tuesday 8 October 2013

Answering TTP Foundation Attends CORD Fall Conference

On Sunday, September 29, 2013 and Monday, September 30, 2013 Taryn (Charitable Programs Director) and Gergana (Patient Advisory Board), attended the Canadian Organization for Rare Disorders (CORD) Fall Conference in Ottawa, Ontario.

Both days were packed with informational presentations made by industry members (Pharma Companies), patients with different rare disorders, medical professionals and patient organization professionals.

The first day was dedicated to developing organizational excellence, which split participants into working groups that were geared towards helping patient organizations like Answering TTP Foundation learn more about; advocacy, volunteerism, patient support programs and communications both online and interpersonal. Gergana and Taryn split into different workshops in the hopes that Answering TTP Foundation could retain a wide variety of information to help the Foundation continue to grow and move forward with our goals! Some of what Taryn and Gergana learned will be seen in updates to programs such as the volunteer program as early as next week, with the introduction of our new Volunteer Involvement Form, which is a way to expedite the volunteer application process, allowing volunteers to sign up online. This will also allow Answering TTP Foundation better match volunteers based on their skill set to our many volunteer opportunities!

Yann Le Cam of EURODIS
The second day was equally as interesting and informative to the Foundation and focused on the planning process for a Canadian plan for rare disorders. We heard from panels of patients, medical and research professionals as well as industry professionals on the importance of developing a plan for rare disorders in Canada. We also had the pleasure of hearing from Yann Le Cam (Keynote speaker of the CORD fall conference), who is the Chief Executive Officer for Rare Diseases Europe (EURODIS). He spoke about the European rare diseases plan, which could be used as a guideline for the Canadian plan. That afternoon the conference was again broken out into small groups to help zero in on what we, as patient organizations in Canada, can do to help prepare the Canadian plan for rare disorders. 

To learn more about how you can get involved check out our "Get Involved" page and choose a volunteer level based on your availability.