On March the 9, 2013, the Network
of Rare Blood Disorders Organizations (NRBDO) Alberta chapter hosted a
successful conference! The Education Day
was packed with discussion regarding common rare blood disorder topics, and
focused on comprehensive care. The topics were easy to understand for all the
patients present at the conference.
In the afternoon, each group separated to individual rooms
for discussions. Dr Bruce Ritchie spoke on TTP.
He explained about the disease and informed us on what is being
researched at present. Out of 14 people
present, 6 were patients. We were lucky
to also have an Apheresis nurse participate in our discussion. All participants
had the opportunity to share their story and learn from each other.
Answering TTP Foundation is excited to collaborate with the
rare disease community.
If we join force, we shall be heard!
Written by Mina Rajan, Patient Advisory Board
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