Gaining an additional hour is definitely an advantage of traveling west. I was able to leave Saskatoon at 10:30am and arrive at the same local time in Edmonton which meant that I got to sleep in!
My cousin Susan met me at the airport to accompany me on my meetings at the University of Alberta Hospital. We were able to meet with a local Apheresis nurse, a newly diagnosed TTP patient and her 8-week-old baby, and a local doctor.
|Terri & Sydney|
We were able to meet with a newly diagnosed TTP patient and mother, her 8-week-old baby and family. She has been fighting strong since the birth of her beautiful little girl. Readmitted to hospital recently, she said that the hardest part is saying goodnight to her baby, who is cared for at night by her supportive husband. This new little family is not from Edmonton and is eagerly awaiting their ability to travel home. Moreover, mom and baby hope to travel to visit friends and family across the country during mom’s maternity leave but fear of relapse may interfere with previous plans. The family had a number of thoughtful questions concerning my experience, available treatments and triggers. To supplement the visit I left them with one of the new patient brochures and I sincerely hope that they reach out to connect with us via the Answering TTP community.
It was an enlightening day in Edmonton. We were able meet with key communicators at the hospital and lend some support to a new patient and her family. Moreover, I’d never toured a biobank facility before, and my engineering background loved the opportunity. Seeing one gives more perspective to a potential biobanking project for TTP. Thank you very much to my cousin Susan for her time and interest in our cause.