 |
| March 3 NRBDO Meeting at Héma-Québec in Montreal |
Network of
Rare
Blood
Disorder
Organizations
"The NRBDO is a coalition
of patient groups, formed to share the best practices in heath care delivery
for people with rare blood disorders such as TTP.
Members of the patients groups work, advocate and lobby together to reach
common goals including: ensuring that finite health care dollars are spent
rationally so as to promote the health of our citizens, reduce pain and suffering,
and help people to live as nearly normal lives as possible and to raise the
level of awareness and knowledge of the patient groups."
Source: http://nrbdo.ca/
Being a
member of this organization enables Answering TTP Foundation to be part of a
large informative blood recipient community with a strong voice for advocacy.
During regular face-to-face meetings and conference calls, member organizations share information about current blood issues, and best practices to further common goals. Member groups also share issues and solutions to run our uniquely sized patient driven organizations.
During regular face-to-face meetings and conference calls, member organizations share information about current blood issues, and best practices to further common goals. Member groups also share issues and solutions to run our uniquely sized patient driven organizations.
If you are interested in learning more or getting involved with the NRBDO through Answering TTP Foundation please contact us at contact@answeringttp.org.
