Monday, 15 September 2014

What are you doing to prep for your 2014 Walk to Answer TTP Together?

It’s hard to believe that our 4th Annual Walk to Answer TTP Together is just around the corner. On September 20, 2014, registered team and individual participants from around the globe will be lacing up their sneakers to Make Strides to Save Lives in the Walk to Answer TTP Together, walking in their communities for 2 hours to raise awareness and funds for TTP support, education and life-changing research!

This year, we talked to team “Cindy Moes” captain Melissa Angermeier about her participation in the 2014 Walk to Answer TTP. We wanted to know why drove her to register and what she and her team of walkers are doing to make this year’s Walk better than ever. Below is what she told us in a phone conversation.

Why are you walking in the 2014 Walk to Answer TTP Together?

“In March of 2011, our mother passed due to complications of TTP. We have registered to walk the last 2 years, this is our 3rd year, because we want to do anything and everything we can to help support the TTP community. We know that had our mom been a survivor of TTP, she would have jumped right in and got involved with what ever she could to help the TTP community.”

What do you do to make your Walk special?

“We make our Walk fun and a family event! Our mom was an exciting person, always positive, always upbeat, and very energetic. So we make sure that our Walk captures her spirit by keeping it fun and upbeat and all about the need to raise awareness and funds for TTP. We also have a picnic after our Walk so that we can spend time together as a family, and my sister and I give out little gifts of thanks to the other participants for walking with us. One more way that we make our Walk special is by having a balloon release at the end to commemorate the memory of our beloved mom!” (Note from the Foundation: please make sure you check with your local bylaws before planning a balloon release)

 Is there anything you do before your Walk to raise awareness?

“We pin up flyers where ever we are able to and my sister and I try to attract the attention of local media, newspapers, radio stations, etc. This year my sister and I are going to be on a local radio station to talk about our walk. Here in South Dakota, not a lot of people know about TTP and we really do try to get the word out however we can. We even tried to book the local Blood Mobile to incorporate a blood donation into our Walk. Unfortunately it was already booked, so we know for next year to call early!”

As a 3 year participant in the Walk to Answer TTP Together, I am sure you know about our awards, are you aiming for one of three awards this year? If so, what are you doing to try to win?

“We are absolutely going for an award, the Spirit Award. As I mentioned earlier our Walk is about being positive and having fun, one of the ways we are keeping things upbeat and fun is by decorating our Walk route. We have cut out poster board into puzzle pieces to line our Walk route with and they each have a word written on it like “Hope”, “Emergency”, and the Foundation’s website to name a few. We found red and black knee-highs this year so some of the women walking will be wearing those. The boys walking get into the spirit too by spraying their hair red and white. We have tie-dyed t-shirts and tutus for the kids to wear and add puzzle pieces to their shirts as well. Finally and most importantly, we ALWAYS have pictures and pins that we carry and wear in memory of our mother, the reason we were touched by TTP.”

Do you have any advice for TTP community members who might be interested in Walking but are unsure about participating?

“Take a leap forward and just do it! We are a small community and we need to band together! The TTP community has become my family and helped me through the hard times I have faced since losing my mom. Participating in this Walk makes me feel closer to the community. There is nothing to lose by participating, only positive gain! By walking, you can help to raise life-saving awareness and funds for TTP in your local community. Our Walk is small but we are determined to spread awareness and be the voice for our mother and other patients and families affected by TTP.”

Didn't have a chance to register to participate in this year's Walk? You can still get involved and make a difference in the lives of those touched by TTP donating to a team or an individual who is participating!  No amount it too small or too great! Click Here to make a difference today!

No comments: