Tuesday, 25 June 2013

Have you joined the Patient Connect Program?

Last month Answering TTP Foundation sent out a feedback survey to participants who are actively involved in the Patient Connect Program. The aim of the survey was to get feedback on how this new program has been working for patients, and how they feel the program could improve.

For those of you who are unfamiliar with the Patient Connect Program, the program connects patients based on TTP experiences, geographical location and overall interests and lifestyle. Patients connect with someone who truly understands what living with TTP feels like. If you are interested in joining the program please register at: https://docs.google.com/a/answeringttp.org/spreadsheet/viewform?formkey=dENkOENjVE1kb3paNlNmR3NZbERFQ2c6MA

Below is an example of what participants had to say about the program so far (all percentages below are based on 100% of participants who completed the survey):

- 75% of participants said that though they want to keep in contact with the original     TTP patient they were connected with, they would also like to be connected with an additional TTP patient.

- 75% of participants said that they were either extremely or very likely to recommend the program to those with TTP.

Thank you to all those who were able to participate. You gave us some great insight into how the program is working for TTP patients and how you would like to see it improved. We are working hard to review all your suggestions and we will implement changes to grow the Patient Connect Program for all TTP patients.

If you have any questions about the Patient Connect Program please contact us at contact@answeringttp.org.