On March the 9, 2013, the Network of Rare Blood Disorders Organizations (NRBDO) Alberta chapter hosted a successful conference! The Education Day was packed with discussion regarding common rare blood disorder topics, and focused on comprehensive care. The topics were easy to understand for all the patients present at the conference.
In the afternoon, each group separated to individual rooms for discussions. Dr Bruce Ritchie spoke on TTP. He explained about the disease and informed us on what is being researched at present. Out of 14 people present, 6 were patients. We were lucky to also have an Apheresis nurse participate in our discussion. All participants had the opportunity to share their story and learn from each other.
Answering TTP Foundation is excited to collaborate with the rare disease community.
If we join force, we shall be heard!
Written by Mina Rajan, Patient Advisory Board